IEP for Autism
For almost 10 years, readers have been asking me questions about an IEP and autism. It’s quite common in our Facebook group to have a Mom pop in and say “We were just told we were getting an IEP for autism, what should I ask for?”
For 10 years, I have resisted writing about putting together IEP Goals and Strategies for Autism. Mostly because IEPs are to be needs-driven, not diagnosis-driven. The goals and supports and services that are in an IEP should be based on what the child needs, not a diagnosis or eligibility category. Every child in the same eligibility category should not be receiving exactly the same thing.
But, now, reluctantly, I’m going to do so. The reason I have not addressed an Autism IEP specifically, before, is because, as Stephen Shore said it:
If you’ve seen one child with autism…
You’ve seen one child with autism.Stephen Shore, Autistic Professor and Researcher.
And it’s true. No two children are the same, even with the same disabilities. I love that my lists of IEP goals and other resources on here get used as frequently as they do. But I was hesitant to put any Autism IEP Samples on here because I don’t want them copied. Please let them inspire you and get your creative juices flowing, but don’t copy them word for word.
But, parents should know how a meaningful IEP for autism is created and built. So I’m going to walk you through the steps.
IEP Eligibility Under Autism
A medical diagnosis of Autism does not guarantee IEP eligibility. To get started, you must request that “your child be evaluated for eligibility for special education services.” Do this request in writing. And remember, the school must evaluate in all areas of suspected disability, so if they do not suspect something, bring it to their attention.
I have written extensively on this in other posts, including sample letter templates for you to use.
Here is the IDEA definition of Autism. I have copied it directly from the IDEA website, with hyperlinks back if you want to dig deeper.
Your state may also further define criteria for autism. I have all 50 states special ed regs here.
IDEA Definition of Autism
(1)(i) Autism means a developmental disability significantly affecting verbal and nonverbal communication and social interaction, generally evident before age three, that adversely affects a child’s educational performance. Other characteristics often associated with autism are engagement in repetitive activities and stereotyped movements, resistance to environmental change or change in daily routines, and unusual responses to sensory experiences.
(ii) Autism does not apply if a child’s educational performance is adversely affected primarily because the child has an emotional disturbance, as defined in paragraph (c)(4) of this section.
(iii) A child who manifests the characteristics of autism after age three could be identified as having autism if the criteria in paragraph (c)(1)(i) of this section are satisfied.IDEA Sec. 300.8 (c) (1)
How to Get an IEP for Autism
I have outlined the specific steps of how to get an IEP in another post. The steps are the same, regardless of the disability.
Once your child has been evaluated, you will have an Evaluation Report or Eligibility Meeting. Different states call them different things.
If, your school declines to evaluate your child (and you disagree) or if you disagree with the findings of their evaluations, ask for an IEE.
Autism Eligibility-Present Levels
But, let’s assume that your child is found eligible under the Autism category. You can still agree with their findings, and feel that their assessments were incomplete.
Your child’s IEP (when finalized) will have a Present Levels section. This is arguably the most important part of the IEP. Why?
Because IEP Present Levels should be a complete, thorough and accurate picture of your child. Everything! The good, the bad, the ugly. All their strengths and all their areas of need. Goals are developed from Present Levels, so it’s important that you get it right.
If it’s not complete, then you have to ask for more or different evaluations. I also want to point out that I don’t know that I’ve ever had a client who just had autism and nothing else. This is why it is so important for parents to be vocal during the evaluation process. The child may be autistic–but it might be dyslexia or ADHD that is actually inhibit the child’s learning.
It is very common to have comorbid conditions, so leave no stone unturned.
But once you have a solid present levels section, you’re ready to begin developing goals.
IEP Goals for Autism
There is no defined number of goals for an IEP. And, not everything can be a priority. Some kids have so many needs, and there are only so many hours in a school day. (this is my own, too, so I get it!)
- How to Write IEP Goals
- FAQs about IEP Goals
- What if I don’t want that IEP goal?
- What if my child does not meet their IEP goals?
I’ve been asked if I have a specific Autism IEP Goal Bank, Preschool IEP Goals for Autism, Social Emotional IEP Goals for Autism, Reading Comprehension IEP Goals for Autism, or Self Advocacy IEP Goals for Autism. Yes and no. I have separate posts on each of those, but self advocacy is self advocacy–regardless of the disability.
IEP Autism vs Emotional Disturbance
Ok, if I’m going to devote a whole blog post to Autism IEPs, I cannot ignore the IEP Autism vs. Emotional Disturbance issue.
If we go back and revisit the IDEA definition of Autism, it said:
Autism does not apply if a child’s educational performance is adversely affected primarily because the child has an emotional disturbance, as defined in paragraph (c)(4) of this section.IDEA Sec. 300.8 (c) (1)
Bold is mine. But basically, it’s right in IDEA–if you suspect autism or ED, go with ED. And then it directs to you the definition of ED.
(4)(i) Emotional disturbance means a condition exhibiting one or more of the following characteristics over a long period of time and to a marked degree that adversely affects a child’s educational performance:(A) An inability to learn that cannot be explained by intellectual, sensory, or health factors.
(B) An inability to build or maintain satisfactory interpersonal relationships with peers and teachers.
(C) Inappropriate types of behavior or feelings under normal circumstances.
(D) A general pervasive mood of unhappiness or depression.
(E) A tendency to develop physical symptoms or fears associated with personal or school problems.
(ii) Emotional disturbance includes schizophrenia. The term does not apply to children who are socially maladjusted, unless it is determined that they have an emotional disturbance under paragraph (c)(4)(i) of this section.IDEA Section 300.8
So listen, I could rant for days on this. I could speculate and pontificate as to why I think it is happening and what my ideas for solutions are.
But, the takeaway is this:
There is an all-too-common trend, seen nationwide, where schools are placing kids in the ED category when the parent feels autism is more appropriate. In many cases, the child was eligible under Autism, sometimes for years. And then parents were told we “have to” move him to Emotional Disturbance.
It has also been my experiencing in advocating for kids like this, that for many years, their autism-related needs went unmet, and the child began to exhibit behaviors consistent with ED.
Again, I’m not going to get into the “why” behind it all. But if you disagree, read and use your IEP Procedural Safeguards. It’s a very unfortunate practice and it has to stop. Ask for assistance in our Facebook Group if you must.
Sample IEP for Autism PDF
Online I found a couple of good examples of IEPs for Autism that I felt were worth sharing. The first one isn’t an IEP per se, but it is a best-practice model that some states are following.
If those districts are truly using this procedure, good for them! So much better than the cookie cutter IEPs that I usually see.Sample-IEP-for-Autism
And this one, eh, I’m not wild about it. But I definitely would steal some of the wording they use in a letter. I like some of the phrasing they used.sample-autism-IEP