How to Organize Your Disabled Child’s Medical Records. {free Care Binder printables!}

How to Create a Care Binder.

I need to do a Care Binder. This is long overdue. I’m traveling across the country in 2 weeks to speak at a conference. I’ve never left Kevin alone since his epilepsy started. And guess what?!? Pretty much his entire plan and his medical records are in my head. Time to organize it and write it down. Print out what I need to print out. (author’s note: This was published a while back, but several of the links to the Care Binder printables were giving 404s, so I had to update it.)

One thing is for sure, our kids generate a ton of paperwork and files. It’s overwhelming at times, isn’t it?

I think I can reasonably consider myself a Type A, organized sort of person. But even Kevin’s stuff gets the best of me sometimes. Right now I’m struggling because I have to find some kind of “proof” that shows he is disabled. I know I have at least two separate letters from physicians, but of course, I cannot find them.

care binders disabled child

On my list of things to do this year is his Care Binder. My system right now is more of a “Care Dump Box.” I put all the important stuff in various file folders and then they go in this box. Problem is, every time I need something, I have to sort through the entire box.

Then sometimes I think, “what if there’s a fire?” I don’t have just one binder to grab and go in case of an emergency. The reasons to create a care binder for your disabled child are endless.

Reasons to Create a Care Binder

  • Primary Caregiver has health or another emergency
  • house fire
  • So you can get respite care.
  • an emergency such as tornado, flood and you need to evacuate
  • no more wasting time looking for important records and files

How to Create a Care Binder.

  • For starters, sort through the links below and figure out what you want. That will take time as each Care Binder resource has several different options to choose from. You have to pick what suits your needs.
  • Then print.
  • Look at what you have. Match up the printables with your child’s records.
  • I personally only throw out duplicates of things. I keep things that are not particularly important in a separate box. That way I know I have it, but it doesn’t all have to be right at my fingertips.
  • Buy what I need, if I don’t have it at home. A bigger binder, better file folders, sheet covers…I’m going to do this right!

Organize the IEP paperwork!

Don’t forget the IEP paperwork! This system helps parents be better advocates.

Click to get the IEP organizer for just $0.99!

Care Binders-Free Printables

Numbered so that you can keep track of which ones you like best before printing.

  1. Seattle Children’s Center: Care Binder Printables 01
  2. Children’s Hospital of Philadelphia: Care Binder Printables 02
  3. Thirty Handmade Days: Care Binder Printables 03
  4. Medical Home Portal: Care Binder Printables 04
  5. Mommies of Miracles: Care Binder Printables 05
  6. Texas Parent to Parent: Care Binder Printables 06


manage child medical records