Disability Acceptance, Advocacy and Activism

Whether it be a small change in your own home or school to lobbying for Federal legislation, I’ll give you the information, support, stories, and inspiration you need to make the world a better place for our kids.

Disability Systems Advocacy is something every household should be doing, to the extent that they can participate.

I recently updated this category and parsed it out into 4 sub categories so you can better access the information you want.

Self Advocacy for Disabled People
Community and Government Advocacy and Lobbying, for when you’re trying to create change in your community or change laws that affect our kids.
Family and Home: Because change starts at home!
School, IEP and educational advocacy: What you need to be a better IEP advocate.

Some examples:

Why I no longer use the term “Special Needs”
Recognizing Ableism in Autism Awareness Materials
How to Write an OCR complaint
Understanding Special Education Funding in 5 graphics
How To Advocate for Mental Health

How Much Does an IEP Advocate Cost?

How Much Does an IEP Advocate Cost?

Your child is struggling. As a mom, you’re stressed, and you’re frustrated. You want to hire an IEP advocate. Everyone keeps telling you, “Get an…

The Extraordinary Burden of IEPs on Moms.

The Extraordinary Burden of IEPs on Moms.

Imagine this, parents. Imagine you are envisioning your child’s future, and the different pieces of his/her future are trading cards. And you say, “Ok, I will give you this card for safety, and in exchange, I get to keep all the cards for food.”

Hand Flapping, Stimming, and Autism

Hand Flapping, Stimming, and Autism

No, just because your child flaps their hands does not mean they are autistic. And, even if it did, we need to stop treating autism like it’s some terrible thing.

SUDEP. It’s time to say the word.

SUDEP. It’s time to say the word.

SUDEP I was at a seminar at our local children’s hospital, to teach parents about epilepsy. I asked the neurologist, “It seems there is a…

Are you a disability tourist?

Are you a disability tourist?

 “You must be the change you wish to see in the world.” Gandhi. I’m taking a year long training program to become a Certified Special…

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