5 Things Every Parent Must Do in the IEP process.
For me, the IEP is not something that I pay attention to just once a year and hope for the best. Many do! I’m not trying to shame anyone, but when you contact me and say, “My IEP meeting is in 45 minutes, can you tell me…..” I know that you are not prepared. You have ignored this until the last possible minute, or you wouldn’t be emailing me as you are on your way out the door.
Is my IEP process easier than yours? No, not at all. But, because I devote so much time to it throughout the year, it appears that way. You get what you give. So if you give it no time throughout the year and ask an afterthought question on your way out the door…..what type of result do you expect? Extensive and consistent parent participation is essential to this process.
Just because I have a more training on the IEP than many parents, does not mean that I don’t think that it’s overwhelming or time consuming. Of course I do! I often say “I wish this is a knowledge base that I didn’t have to have.” But I also have resigned myself to just suck it up and do the best that I can for my son. The IEP process is overwhelming.
What if I told you that you could narrow it down to 5 main things? Would that make it easier? What if, like for our kids sometimes, we could chunk it down?
I know that part of this problem is that parents do not feel listened to. And when that repeatedly happens, you feel beaten down and a “why bother?” attitude. And I get that too. That is why I spend so much time helping parents understand the process. So that parents can use the process and use language that the district is more likely to respond to.
There are five components built into the IEP process that invite parent participation. Yes, you should be participating throughout, but parent participation does not begin and end with the IEP meeting. There are other parts that are just craving for your attention. By being aware of these components and participating to the maximum extent allowed, you will make the overall process easier on yourself. You are more likely to be heard and listened to. So here they are–the 5 components of the IEP process that parents must participate in.
5 things every parent must do in the IEP process
- Initial/Re Evaluations: This one doesn’t happen as often as the other parts, but it is very important. An initial evaluation happens when your child is first evaluated for Special Education services. So, what does the participation look like? Easy. A letter. The district is required to evaluate in every area of suspected disability. So, if they do not suspect a disability in an area, it is your responsibility and opportunity to bring it to their attention. Describe it. Define it for them. In your letter, tell them specifically what you are seeing.
Depending on what state you are in, your child is re-evaluated every two or three years. Even if it is a re-evaluation, they are required to evaluate in every area of suspected disability. So this is the time to bring up new issues if you have not already done so. This is also the time to submit in writing, that you do not wish for the re-evaluation to be a “review of records.” You may not suspect any new diagnoses. But if the child is older, you may want assessments done that pertain to possible vocational training and such.
2. RR/ER report: You should have provided data to your team during the evaluation process. Either you participated in formal assessment (such as filling out the parent portion of a Vineland) or you provided concerns in writing, or both. When the evaluation process is complete, it is compiled in a report. The PA one looks like this. There are parts where the team can state that they agree or disagree with the report. If you do not receive that, ask for a PWN stating the results and/or eligibility, and you can have your say that way.
3. Parent Concerns letter: I can’t brow beat parents enough about this! I’ve said it over and over and over: this is the most important part. The Present Levels section of the IEP is what drives later portions of the IEP, and parents MUST submit their parent concerns to be included in that section. Don’t wait to be asked for it, if your IEP meeting is coming up, submit it. If it is not included, make note of it on the PWN. Get yourself the IEP organizer so that you are current and have an ongoing list of concerns, and a method for collecting your own data.
4. After IEP meeting letter: Look, I know that feeling of relief. You come home from the IEP meeting, kick your shoes off and pour a glass of wine. Whew! Made it another year! All you have to do now is wait for that final copy to arrive and you are done for another year, right? NO! WRONG!
First, you should have been taking notes or have someone take notes for you at the meeting. If you had a notetaker, you ask for a copy of those notes IMMEDIATELY after the meeting. If you did neither, when you get home, you have to start writing. So whether it’s pad and pen or on the computer, you have to start documenting everything that was talked about and agreed upon. I can’t even tell you the number of phone calls and emails that I get from parents that say, “I don’t get it, the final IEP I got is very different from what we discussed in the meeting.” It happens!
So, you immediately, within 24 hours, you do a letter. Send it to your child’s IEP team leader. “Dear so-and-so, Lot of information was tossed around today, so I just want to make sure that I am clear on what was discussed today.” And then just do a bulleted list. All of it! If they do not refute it, it stands as truth (in the eyes of the law, should you find yourself in DP).
5. Parent Letter of Attachment: In PA, we get a form called a NOREP at the end of the process (after all evaluations and meeting). Most states call this the PWN. In Pennsylvania it is essential that you sign it because if you do not, it automatically goes into effect in 10 days if you do not. Check your state regs for the specifics on this. Even if you agree, you must sign it. If there are parts you disagree with, YOU WRITE IT ON THE FORM. You can put what you want on the form, ours has a big empty space at the bottom. Or, write on the back. My point is, even though it’s Parent Letter of Attachment, don’t submit any attachments! Attachments get “lost” but NOREP/PWNs rarely do.
Hopefully this simplifies it for you. These are the 5 parts of the process that you need to be paying particular attention and participating. As a general rule, for each part, participate in writing. Stay professional and child focused. And if you have any questions, ask!
Here the 5 components, in more detail:
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