I have mixed emotions about Valentine’s Day. Sure, I see the whole “fabricated holiday” thing to generate sales on candy, flowers on cards. On the other hand, a day to celebrate love and friendship isn’t necessarily a bad thing. It certainly brightens up a dreary winter! Here are some printable social stories for Valentine’s Day…
Lobbying for Special and Public Education If you follow this blog, you know that my main passion is lobbying for changes to the very broken special education system. I learned early on that while it’s important work to be helping one child out of a situation, it’s necessary to be involved in systems change too….
Special Needs Mom Friends Maybe your child has significant time and energy draining issues. Perhaps you are a parent, but you also have your own personal mental health or physical health challenges. My generation (Generation X) is now the “Sandwich Generation.” We are taking care of both our kids and our parents. In the past…
If you are looking for organizations that help disabled people, you’re at the right place. This will give you a starting point. Some day I’ll tell you the story about how the guy at the Office of Civil Rights put us on hold while he took his lunch break. Yep, he did. He called me…
I hear it often. Does your disabled child know how to tie their shoes? And are they past the age of when they should be able to tie their shoes? It’s a pretty common problem. After all, if your child struggles with fine motor coordination, sequencing, and other issues that are elements of shoe-tying, it…
I was at a seminar at our local children’s hospital, to teach parents about epilepsy. I asked the neurologist, “It seems there is a lot of information about seizures and all that…but I never hear anything about SUDEP and that is what worries me most. Is there any new research on SUDEP? Is there anything…
Last week I was kinda down. Kevin was in the hospital overnight as we struggle to get his seizures under control. The winter blues had set in and our pretty snow from the blizzard is nothing more than a dirty mess at this point. I did a post about the different ways that the special…
I have discovered that my real passion is systems advocacy. That is, trying to make the laws, programs, systems and funding better for our kids. I will say, that for right now, for me to be able to do this is a luxury. And what I mean by that is, my own personal situation is…
Here it is. Now we move on. Glad you found the site.