Sorry I haven’t posted much this week. To be honest, I’ve been in a funk for much of the week. And, when Michele and I started this blog, one of the things we agreed on is that this blog would always be positive–this wouldn’t be a site that fostered wallowing and complaining. And I’ve been doing both this week.
It started on Tuesday. I went with my friend and special ed advocate mentor to Ben FM, to be on Real Mom Radio again. The focus of our talk was our kids, special needs parenting and the NSEAI program. Of course, we were talking with Joey, who runs that show. Joey has an adorable little guy, who is typical. And I love her to death–don’t get me wrong. But she is naive and ignorant of what it’s like in my world.
Before she met and interviewed me, she was unfamiliar with chromosome disorders, she has no idea what an IEP is…..I could go on but I won’t. But as the show progressed, we had a few hiccups, particularly when Marie and I started spewing acronyms, and we’d have to backtrack and give a quick explanation and remind ourselves that not everyone knows what we’re talking about.
And I was just so jealous, so envious of that ignorance. Back to when I didn’t know……….because I didn’t have to know.
Then, what didn’t help was the Spread the Word video I made for Spread the Word to End the Word day. Because making that video required that I look at old photos. And particularly when I see photos of me pregnant with him and his first Christmas…….I just really long for that time of innocence. When we didn’t know……..
But, life marches on, so on Thursday I found myself with Michele (co-owns this site and Kevin’s advocate), and it was a sunny day. We visited an APS (see? another acronym!) as a potential placement option for Kevin, one that we both liked. It was a sunny day, and feeling down, I thought some retail therapy might help. It did. We spent a few hours and a few hundred bucks at the Exton Mall, I have more idea of a plan for Kevin and things turned around.
They usually do, right?